Ongoing
Oct. 27th, 2025 10:48 pmDuring last week's pain management appointment, my doctor brought two trainees/interns in and asked me if they could sit in on our consultation. When I said yes, I didn't realize I'd have to explain some things to them about Chiari I malformation, Ehlers-Danlos syndrome, my brain surgery, and other ideas/procedures floated to treat me. It didn't help that I forgot the word "vertebrae" during the surgery talk and had to tell them that some of the small pieces that jut out of my spine were shaved down to make more room for my brain. When my doctor asked if they had questions, the woman asked if any other things were suggested to treat me, at which point I told her traction made things so much worse and I absolutely refused to get my neck fused as a result. (She also thought people realized they had Chiari just in childhood, and I had to say that if it doesn't become obvious in the victim's childhood, it often does in your 30s, which it did for me.)
Then an office worker came by to say there was food in the kitchen area and the two immediately disappeared for it, mid-consultation, while I and my doctor exchanged a "looking into the camera on The Office" look.
I told him that I sometimes get numbness, pain, or a burning agony on the front of my left thigh, which he said came from the spine, like the L3 area, and suggested I do certain stretches for it. The office had me take a cognition test, due to possible side effects of some of the medications I'm on, and I scored average in most areas and above average in one. I discovered during it that I can memorize five numbers at a time but not six.
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The "check brake light" dashboard alert is once again randomly coming on and turning itself off in my Kia Forte. Having replaced a wire, which worked for seven months, and replaced the brake light bulb and cleaned its housing, which worked for three months, my mechanics have no other idea what to do, and I don't trust Huntington Volvo, where I bought the car, after they gave me this car with four rotting tires on it and refused to get back to me on anything. Thus, I'm living with the alert when it's there. The way it activates with a loud, distracting ~ding~ every time sucks.
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Since the government is still shut down, I'm not getting my November food money.

